7 weeks and i'm breathing easy....7 weeks and someone else is grieving.
I'm so sorry to my donor family for your loss. I hope that they take comfort that I am doing so well...I hope they realize that by donating their loved ones organs they saved my life. They allowed my family and friends not to grieve....
I'm so grateful to lay awake in bed and breathe deep. No crackles of mucus, so loud keeping me awake at night, no struggles through my mouth for breath...just nice smooth flow through my nose...I'm breathing...it sometimes catches me off guard. It sometimes is still hard to believe.
My clinic appointment on monday went well again. I am holding strong at 40% my x ray continues to improve, the only thing we have to work on is my kidney levels...they don't seem to be working properly which we think is due to being dehydrated from all the drugs. I'm also quite nauseous (throwing up is not fun every day!) all the time, also have some headaches...so we have to fix that. If those are the only things I have to complain about after going through a HUGE surgery then I think I am pretty lucky.
I am keeping up with physio and now can stand up from a chair without using my arms, thighs are getting stronger.
I had a bronchcscopy on tuesday. They drug you up, and stick a scope down in to your lungs and take snippets of the lungs to see if you are growing any bacteria or have rejection of the lungs. I felt every snippet this time, and kept raising my hand for more drugs.....but they never came, so all three snippets were felt, ouch ouch ouchie. My pain tolerance is getting high these days.
is today today today today today!!!! soooo exciting!You can check out the video of it, either live tonight, or tomorrow online at
. Everyone has been working sooo hard and now today is it!!! bah six months in the making, and soo much has happened! I was listed for a double lung transplant, AND got new lungs all in the time that this show was pulled together!!!
Matthew Strader you are amazing! An article was put out by the enterprise this morning about the show and "summer for hattie". You can check out the article online by
Every now and then someone can change another person’s life. Sometimes they inspire. Sometimes they educate. Sometimes, they don’t even try.
And the ever-growing story of Hattie Dunstan is one of those ever-growing circuses of life-changing moments – and all this Caledon girl is trying to do is take one long walk on the beach.
Dunstan is a Cystic Fibrosis sufferer recovering at a friend’s condo in downtown Toronto from a double lung transplant performed on?July 5.
This diminutive, and yet formidable Caledon resident has faced a medical challenge this summer that could topple any character, and through it all, she has maintained.
Her unbreakable spirit, her passion for life, permeates everything she does, every word she speaks, and every person she keeps in her life.
So overwhelming is the love that she has nurtured with her family and friends during her 22 years, that her trial has turned into their mission.
‘The Summer for Hattie’ has become a town-wide push for Cystic Fibrosis fundraising and organ donation awareness that has seen groups of 20-50 friends and family get together for bottle drives, car washes, mock-fashion events, flower sales and the piece de resistance… ‘The Couture Fashion For a Cure Found’ show that will happen tonight, August 26, at the Glen Eagle Golf Club.
For The Enterprise, it began with two girls in the lobby.
Kim Alderdice and Rachael Grice made an appearance asking for coverage of their first event, ‘The Mainstreet Strut’. A mock fashion show and auction that saw them turn a downtown Bolton location into a raucous mix of firemen being auctioned off for yard work, and friends taking to the stage to strut in silly costumes and entertain a boisterous crowd. Both of the girls admitted openly that they didn’t know what they were doing, just that they had a friend named Hattie who had inspired them to try.
It is only three months later and Alderdice is a model of organization and co-ordination. Grice is an experienced MC and host. The group of girls working with them is a well-oiled machine that has not only put on the events they imagined, but surpassed their own, and anyone else’s expectations with their success.
‘The Mainstreet Strut’ raised $4,604.93 for the Canadian Cystic Fibrosis Foundation.
Their two charity car washes have raised $770.39, and $600.75.
A recent bottle drive pulled in, in excess of $1,000.
And flower sales are topping the $500 mark.
Hattie’s crew has gone from a group of rookies, to seasoned philanthropic veterans.
And still, talk to any of them and it remains about one thing. It is for one thing. It is because of one thing.
“It’s because of Hattie,” Alderdice told The Enterprise. “It isn’t even because she’s suffering from this disease. It’s because she’s an important part of all of our lives.”
Dunstan spoke to The Enterprise from a condo in downtown Toronto where she continues her recovery.
She is a shell of the girl seen in pictures as her body has atrophied from her weeks in intensive care to the point that she now works every day to rebuild the muscle structure she lost.
And yet, spend an hour with her and you will feel nothing short of meek in her presence. She is the embodiment of the potential of the human spirit. And a life-changing example of what real strength is made of.
And, without a doubt, you’re also going to join her in a good laugh.
“I’m so messed up,” she jokes, while rubbing at her temples. “The drugs are so strong. Last week I couldn’t hold a conversation.”
“She just kept apologizing,” chimed in Alderdice. “It was pretty funny.”
Dunstan’s journey has been a roller coaster of ups and downs through a fog she can’t control.
Her downs began approximately a week before her transplant, when her own lungs started to succumb to her disease. Her lung function fell to drastic levels of just over 10 per cent.
“It was really scary,” she said.
Placed on the rapidly deteriorating organ donation list, her personal blog became a macabre story of fear, confusion, impatience, frustration, and, through it all, strength.
At two in the morning one fateful night, she got the call.
Lungs were only 40 minutes away.
And her coaster climbed up.
The week after the surgery, she doesn’t remember. The drugs were too strong.
Today, she struggles to focus. She works hard to rebuild the body she’s not so sure is hers anymore.
“It feels like someone took my brain and put it into someone else’s body. Like this isn’t mine anymore,” she said, her hands waving over her torso. “But I know I just have to keep working. Build up my strength, and it will be mine again.”
For now, tests are showing that she has stopped growing bacteria in her lungs. Her lung function is at 40 per cent and climbing. Her daily frustrations bring her down, and then the realization of the benchmarks she is passing bring her back up.
She is slowly working toward a full recovery that will lead her to the goal of walking the beach at her cottage.
And without knowing it, she is changing lives everyday.
This reporter went for what should have been a very routine run during the evening after a visit with Dunstan.
A pause at a trail bridge, a deep breath in and a gratitude for the simplest of things never felt before changed all of that.
There is only one person to thank for that.
You can thank her too. All you have to do is spend $40 on a fashion show ticket you won’t regret and spend an evening with a dedicated group of girls trying desperately to make sure nobody else has to go through what their friend has gone through.
For more information on the event, or how to donate visit: www.cfforcf.com.
Follow Hattie’s journey at www.icecreammaplesyrup.blogspot.com.
And find out about organ donation information at: www.giftoflife.on.ca.