I have found the cure for diabetes while living out here on the west coast....the cure requires you to leave your apt at 8am and don't come back till 5:30pm...what are you doing in all this time? Walking, walking, walking everywhere. I did have errands to run, dr's to see until 11am, so really it was only like 4 or 5 hours of walking, but ask me how much insulin I took yesterday, while I ate my ice cream, my hot chocolate, my pizza for lunch, my bagel for breakfast, and my sweet potato for dinner (all carbs and all usually requiring insulin) I took NOTHING all day. It was one of the nicest days ever not to get poked with every meal I had. My sugars all day long were 7.6 and 7.8mmol.
Take that diabetes, up your ziggy with a wa wa brush.
I went to the vancouver transplant clinic. They are really nice. Much smaller then Toronto, which I am enjoying since I'm impatient to get outside and do things, rather then sit in a blood lab, sit in a waiting room to see the dr. all this sitting around. I'm glad it's in an out. They see 6 patients a day in the morning. Super fast, compared to what I'm used to in Toronto.
In BC they've started practising putting all their patients on azithromax. I liked this idea immediately, since before transplant I was on azithromax for inflammation.
I have rejection...which essentially is inflammation. Why not go on azithromax to help stave off rejection? Hey if it was him, the dr. out here, he said he would want to go on it if he had a lung transplant. Why not try everything you can to keep these babies perfect, happy, healthy and pink?
So the acute rejection, coupled with this annoying nagging cough and little bit of sputum I've had, we decided to start me on azithromax. Perfect. Lovely.
My lung function yesterday was back up to 2.01liters. My WBC was back down to 8.5. My haemoglobin was at 105...the only thing I can complain about is my creatine, kidney function was running at 110. A smidge high for my liking.
Also for all you other cystics out here, my tac the last two weeks, they keep trying to raise it, but it's still staying at 4.7. Could it be the domperidone they started me on? flushing the tac out of me before it can get absorbed? Any thoughts, suggestions?
If you want to check out what we've been up to while being in Vancouver, head over to my non medical blog hattitude-hattitude.blogspot.com
Showing posts with label clinic. Show all posts
Showing posts with label clinic. Show all posts
Wednesday, February 8, 2012
Friday, August 13, 2010
best birthday ever
helloooo,
so monday clinic went really good.
they said my xray was even better then when I left hospital. My bronch came back growing nothing...thats right, i am growing NOTHING in my lungs...for right now, nata thing. Its been 22 years not growing bacteria. hello world, its nice to not be growing anything. the only thing was my kidneys are not functioning correctly so on this monday we will see if those levels have come back down...they think its from the tac levels, an anti rejection drug.
I started exercise this week. it is sooo hard with my weak thigh muscles, I already fell in the room once this week, and my cousin had to lift me off the floor haha....hoy boy.
but ive had some real good mile stones this week....i showered, went on my side,(so far ive only been able to lay on my back, i still lay on my side, saying ouch ouch ouch ouch the whole time, but i bet its good to practise...) and went on the treadmill....AND got up from the edge of the couch without the assistance of my arms. I also went down to the courtyard. Makin improvements....just have to keep pushing, mind over matter. walk walk walk walk all the time so I can start walking normally...haha
I think my brain is starting to feel less alien too (although it is still soo weird feeling) ...since i even thought about going back home home home this weekend. i saw a photo of my cat and got incredibly homesick.
the fashion show is less then two weeks away! i cant wait to see it all go down. (theyre doing a live feed, so if you cant make the actual event, you can see it online!) you girls are doing an awesome job! wish i could be there live...but 300 people...im not suppose to be out in public places where i dont know the cold or germ situation....next year next year
its funny i started a journal each day so i could write down exactly what i did, to know the improvements snice its so hard for me to tell, and write down my moods, and yesterday was such a bad day...today is way different. ups and downs. i hope soon i willl start reading books again. i think i will, cause ive been thinking about it a lot...i have found that when i start thinking about things a week or two later i start to do them....if that makes sense...like i remember in the ICU i did not want my blackberry very often...the drugs messed me up and i just had no desire, but know it goes with me everywhere, and is back to normal, i also used to not want to talk on the phone, and now i am slowly anwsering and talking more on my phone....sooo everything will come in time...6 weeks on monday. Just have to pass the time for the next little while. but i think taking it one day at a time filled with visitors, so i dont get bored or depressed is key...followed by forcing myself to do all the hard stuff, like no matter how much i dont want to go for that walk...get up get up and just do it............
wow biggest rant ever ahahah...sooon ill be me again, i just have to patient.
ps did i mention i am going to have THE best 23rd birthday EVER....its in december....AND ill have new lungs (and hopefully no more alien feeling and able to walk normally? hah) and be all fixed up by then....chya...cant wait!
so monday clinic went really good.
they said my xray was even better then when I left hospital. My bronch came back growing nothing...thats right, i am growing NOTHING in my lungs...for right now, nata thing. Its been 22 years not growing bacteria. hello world, its nice to not be growing anything. the only thing was my kidneys are not functioning correctly so on this monday we will see if those levels have come back down...they think its from the tac levels, an anti rejection drug.
I started exercise this week. it is sooo hard with my weak thigh muscles, I already fell in the room once this week, and my cousin had to lift me off the floor haha....hoy boy.
but ive had some real good mile stones this week....i showered, went on my side,(so far ive only been able to lay on my back, i still lay on my side, saying ouch ouch ouch ouch the whole time, but i bet its good to practise...) and went on the treadmill....AND got up from the edge of the couch without the assistance of my arms. I also went down to the courtyard. Makin improvements....just have to keep pushing, mind over matter. walk walk walk walk all the time so I can start walking normally...haha
I think my brain is starting to feel less alien too (although it is still soo weird feeling) ...since i even thought about going back home home home this weekend. i saw a photo of my cat and got incredibly homesick.
the fashion show is less then two weeks away! i cant wait to see it all go down. (theyre doing a live feed, so if you cant make the actual event, you can see it online!) you girls are doing an awesome job! wish i could be there live...but 300 people...im not suppose to be out in public places where i dont know the cold or germ situation....next year next year
its funny i started a journal each day so i could write down exactly what i did, to know the improvements snice its so hard for me to tell, and write down my moods, and yesterday was such a bad day...today is way different. ups and downs. i hope soon i willl start reading books again. i think i will, cause ive been thinking about it a lot...i have found that when i start thinking about things a week or two later i start to do them....if that makes sense...like i remember in the ICU i did not want my blackberry very often...the drugs messed me up and i just had no desire, but know it goes with me everywhere, and is back to normal, i also used to not want to talk on the phone, and now i am slowly anwsering and talking more on my phone....sooo everything will come in time...6 weeks on monday. Just have to pass the time for the next little while. but i think taking it one day at a time filled with visitors, so i dont get bored or depressed is key...followed by forcing myself to do all the hard stuff, like no matter how much i dont want to go for that walk...get up get up and just do it............
wow biggest rant ever ahahah...sooon ill be me again, i just have to patient.
ps did i mention i am going to have THE best 23rd birthday EVER....its in december....AND ill have new lungs (and hopefully no more alien feeling and able to walk normally? hah) and be all fixed up by then....chya...cant wait!
Tuesday, June 29, 2010
The Secret World of Status 3
Hey everyone, this is Hattie's "cystic cyster" L.
No, Hattie has not got the call yet--we are still anxiously waiting on that--but our girl was simply too emotionally and physically drained today to update the blog herself, so I will be her hands and relay the messages she text me this afternoon.
Yesterday was very hard for Hattie and it wasn't any easier today. Clinic was surprisingly not busy and she was pleased to see the head honcho, Dr. T. And there it was confirmed: the new med combo is not working. Her pfts have continued to decrease and are now sitting at 15% and her WBC has risen to 20, from 17 last week. The doctors decided (and Hattie even messaged me this in anticipation of it happening) that she is 'rapidly deteriorating' and will be moved up to the 'secret' third status list.
Unfortunately, for now she must also stay in the hospital again, at least until they try a new drug combo and confirm it is working (they are trying piptazo and colistin). Following her last, er, memorable hospital stay, she was not too enthused but she also accepted that--realistically--it's not wise for her to go home at this point in time. On the upside, she is staying in my old room with the giant fridge and freakishly huge washroom and her Mom will be staying with her tonight. The entire fam jam will also be coming down for her Mom's birthday tonight too.
It's all very scary for Hattie and her family now, so they are asking for all your super-charged-positive-vibes! Let's start visualizing those new lungs!
- Lindsay
No, Hattie has not got the call yet--we are still anxiously waiting on that--but our girl was simply too emotionally and physically drained today to update the blog herself, so I will be her hands and relay the messages she text me this afternoon.
Yesterday was very hard for Hattie and it wasn't any easier today. Clinic was surprisingly not busy and she was pleased to see the head honcho, Dr. T. And there it was confirmed: the new med combo is not working. Her pfts have continued to decrease and are now sitting at 15% and her WBC has risen to 20, from 17 last week. The doctors decided (and Hattie even messaged me this in anticipation of it happening) that she is 'rapidly deteriorating' and will be moved up to the 'secret' third status list.
Unfortunately, for now she must also stay in the hospital again, at least until they try a new drug combo and confirm it is working (they are trying piptazo and colistin). Following her last, er, memorable hospital stay, she was not too enthused but she also accepted that--realistically--it's not wise for her to go home at this point in time. On the upside, she is staying in my old room with the giant fridge and freakishly huge washroom and her Mom will be staying with her tonight. The entire fam jam will also be coming down for her Mom's birthday tonight too.
It's all very scary for Hattie and her family now, so they are asking for all your super-charged-positive-vibes! Let's start visualizing those new lungs!
- Lindsay
Monday, March 22, 2010
abandonment
what so I get off IV's...I get my freedom back, I get my energy back...I start back at my business full swing, start organizing a fashion show, start eating sushi (yes it's true...before last week, I had never had sushi, now perhaps it is my favourite things EVER), I start going out every night, staying out till two, planning vacations...and what??? I abandon my blog???...yes yes this is pretty much the case as is. Well I abandoned this blog...if i'm not updating this blog, you can check me out at http://hattitude-hattitude.blogspot.com. My fashion blog, for my You've Got Hattitude Jewellery.
Tomorrow is clinic day. Have not been down in three weeks. Feeling really great! Hope the numbers will be reflective of that. Planning a trip over easter to visit my cousin. Super excited. Will be the first time flying by myself with oxygen though (only the second time flying with oxygen. I used it back in november, when we realized that I dipped low cause of the cabin pressure, even my mom went down to 91%!!)...little nervous about that. Hopefully the doctors will give me the a-ok tomorrow to travel. Fingers and Toes crossed that everything goes splendid tomorrow. Oh ALSO HUGE news, i no longer have to wait until may to see the endocrinologist doctor, diabetes, hormones doc. I'll get this thyroid situation and diabetes stuff sorted out...TOMORROW. they had a cancellation, and I was able to get my name in. WOo. thank gosh. I'm sick of these symptoms! Looking forward to hopefully some answers tomorrow, a stable day, and great numbers! Also seeing the jersey boys tomorrow evening....good day? good week...good life eh? I think so. Blog ya later! ha
Tomorrow is clinic day. Have not been down in three weeks. Feeling really great! Hope the numbers will be reflective of that. Planning a trip over easter to visit my cousin. Super excited. Will be the first time flying by myself with oxygen though (only the second time flying with oxygen. I used it back in november, when we realized that I dipped low cause of the cabin pressure, even my mom went down to 91%!!)...little nervous about that. Hopefully the doctors will give me the a-ok tomorrow to travel. Fingers and Toes crossed that everything goes splendid tomorrow. Oh ALSO HUGE news, i no longer have to wait until may to see the endocrinologist doctor, diabetes, hormones doc. I'll get this thyroid situation and diabetes stuff sorted out...TOMORROW. they had a cancellation, and I was able to get my name in. WOo. thank gosh. I'm sick of these symptoms! Looking forward to hopefully some answers tomorrow, a stable day, and great numbers! Also seeing the jersey boys tomorrow evening....good day? good week...good life eh? I think so. Blog ya later! ha
Monday, January 25, 2010
Pollywogs
AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH....that is my internet scream of frustration and disappointment...
Today I went to down to clinic. I called my doctor yesterday, thankfully she was on call this weekend. I asked if I could come down on monday for my breathing test, and blood work, because to leave it until Tuesday, normal clinic day would be cutting it really close to cancel everything for our trip Wednesday morning. most things need to be cancelled within 24 hours....soooo we went down today and it was the worst breathing test I have done in eight months....with a white blood cell of 18 (normal is below 11) Grrrr
I blew a 19% a .68 liters...I guess it was coming though, I have been battling this infection with orals for the past two or three months. I still can't believe though that my lung function has dropped so low.
I can hear all the crackles and gackles and gurggles of awfulness inside my chest though. It's also not fun when I get out of breath putting on my slippers..time for a good tune up. Let the meds wash through my body, clean out the junk, and sooth the heaving and groaning chest. It's time, and so I've bit the bullet, the whole bloody gun (where did bite the bullet saying come from anyways?) and we start IV on Thursday. The earliest appt. they can get me for an out patient is Thursday for a picc line. I could have gone in to hospital today on the ward with a bed, and gotten a picc line in today and drugs started, but it is just to risky going in to hospital, in case I catch something else. There have been too many cases of people catching cepatia (a horrible bacteria that can have devastating results in people with CF) from being in the hospital. It is just not worth the risk...so I will wait three days, unfortunately to start. I'd rather start today, and get three days under my belt, to start feeling better, to start getting on with all the things I have planned, but c'est la vie.
It's really aggravating and sad that I feel so vulnerable by going in to hospital. I feel so threatened and not safe at all because of all the outbreaks and the horrible condition of the ward. I won't go in, and so as a consequence I have to wait three days to get started on medicine, when my lung function is so low, but to me the risk is just to great. I wish the ward was newer, and in better condition. I wish someone would swoop in with some money and be able to give the ward all private rooms, and our own bathrooms. Bacteria and germs love moist areas, like bathrooms, and the ward has us sharing bathrooms with other CF people...it is insane to me. They also have us stay on the same floor as people with cepatia. Out in BC I've read in some hospitals, they don't even have them stay on the same floor, let alone the same wing, like at my hospital. The cepatia CF's and the non cepatia CF's are on separate floors out in BC. Our ward is so run down, that one time I was in the hospital, a few years ago, my toilet overflowed the whole entire ward, and the nurse says to me, oh just use the washroom down the hall, and I had to say to her, I'm MRSA positive, I can't use the same washroom as other CF's. She was like "oooo right". It's that kind of care that is sometimes demonstrated, which scares me...what else goes on to cross spread germs and bugs between patients, so I just could not take the risk, and will wait the three days, ugh.
Three days is a long time to dwell and worry about getting a picc line in. The last couple times I've received one in, it has not been a pleasent expeirence. Here is some good news though, I got FIVE, that's right FIVE adavant pills to get me through the process, as well as a stronger strength of it. I usually get advant to help calm my nerves. It's for anxiety and when I take it, it just makes "everything okay". Last time they gave me a weak little tiny baby dose (it wasn't my regular doctor) and so I tried to take another pill half way through the procedure, and I dropped it on the floor...ARG. I was not a happy camper especially since the whole ordeal took an hour and a half, I was completely aware of everything, and I hated the doctor doing it. I've had that doctor 4 times before putting my line in, and each time has been disaster, a heart palpitation after he put it in, sticking me three, four, million times, does not seem confident, makes weird not funny, almost insulting jokes, and people tell me he is the head of the department. I tried to give the guy the benefit of the doubt the first 3 times I had him put a line in me...but the 4th time I had him, and it took him an hour and a half as well as both arms, AND when another doctor says to him, "would you like me to take over" (insinuating that he was taking way to long and going about it the wrong way) so on top of our previous history, me and this doctor, that was it, I called it quits on him...sorry dr. you've had it, I red flagged myself and you will never touch me again....So on Thursday if I see him, I'm either going to OD on my adavant pills, or I will just have to flat out refuse to have him, it's too traumatizing. I swear he makes me sicker from the experience for days after wards.
Anyways I'm not going to get discouraged, because these IV's will help me feel better. It's pretty frustrating when the littlest thing makes you get out of breath, so it will be nice to feel better on some meds...
It sure does feel like since November I've had some really bad karma coming my way...but I guess that just means it can only get better.
These IV's will make me feel fantastic again, I'll continue to work out, and while I'm at home doing these IV's I'll get to research my road trip out east with some girlfriends, my trip to California with my mom, my trip to Washington with my cousin, my trip to Barbados with my best girlie NM, and my trip to Ireland in September...All of course are works in progress, but hey I've got to have something to research for the next few weeks on IV! ha
I've been reading these books by Jeannette Walls, and I'd like to think I have gumption! So I've been handed a couple batches of lemons these past few months, I'll just pour myself another glass of wild jumbleberry juice please.
Today I went to down to clinic. I called my doctor yesterday, thankfully she was on call this weekend. I asked if I could come down on monday for my breathing test, and blood work, because to leave it until Tuesday, normal clinic day would be cutting it really close to cancel everything for our trip Wednesday morning. most things need to be cancelled within 24 hours....soooo we went down today and it was the worst breathing test I have done in eight months....with a white blood cell of 18 (normal is below 11) Grrrr
I blew a 19% a .68 liters...I guess it was coming though, I have been battling this infection with orals for the past two or three months. I still can't believe though that my lung function has dropped so low.
I can hear all the crackles and gackles and gurggles of awfulness inside my chest though. It's also not fun when I get out of breath putting on my slippers..time for a good tune up. Let the meds wash through my body, clean out the junk, and sooth the heaving and groaning chest. It's time, and so I've bit the bullet, the whole bloody gun (where did bite the bullet saying come from anyways?) and we start IV on Thursday. The earliest appt. they can get me for an out patient is Thursday for a picc line. I could have gone in to hospital today on the ward with a bed, and gotten a picc line in today and drugs started, but it is just to risky going in to hospital, in case I catch something else. There have been too many cases of people catching cepatia (a horrible bacteria that can have devastating results in people with CF) from being in the hospital. It is just not worth the risk...so I will wait three days, unfortunately to start. I'd rather start today, and get three days under my belt, to start feeling better, to start getting on with all the things I have planned, but c'est la vie.
It's really aggravating and sad that I feel so vulnerable by going in to hospital. I feel so threatened and not safe at all because of all the outbreaks and the horrible condition of the ward. I won't go in, and so as a consequence I have to wait three days to get started on medicine, when my lung function is so low, but to me the risk is just to great. I wish the ward was newer, and in better condition. I wish someone would swoop in with some money and be able to give the ward all private rooms, and our own bathrooms. Bacteria and germs love moist areas, like bathrooms, and the ward has us sharing bathrooms with other CF people...it is insane to me. They also have us stay on the same floor as people with cepatia. Out in BC I've read in some hospitals, they don't even have them stay on the same floor, let alone the same wing, like at my hospital. The cepatia CF's and the non cepatia CF's are on separate floors out in BC. Our ward is so run down, that one time I was in the hospital, a few years ago, my toilet overflowed the whole entire ward, and the nurse says to me, oh just use the washroom down the hall, and I had to say to her, I'm MRSA positive, I can't use the same washroom as other CF's. She was like "oooo right". It's that kind of care that is sometimes demonstrated, which scares me...what else goes on to cross spread germs and bugs between patients, so I just could not take the risk, and will wait the three days, ugh.
Three days is a long time to dwell and worry about getting a picc line in. The last couple times I've received one in, it has not been a pleasent expeirence. Here is some good news though, I got FIVE, that's right FIVE adavant pills to get me through the process, as well as a stronger strength of it. I usually get advant to help calm my nerves. It's for anxiety and when I take it, it just makes "everything okay". Last time they gave me a weak little tiny baby dose (it wasn't my regular doctor) and so I tried to take another pill half way through the procedure, and I dropped it on the floor...ARG. I was not a happy camper especially since the whole ordeal took an hour and a half, I was completely aware of everything, and I hated the doctor doing it. I've had that doctor 4 times before putting my line in, and each time has been disaster, a heart palpitation after he put it in, sticking me three, four, million times, does not seem confident, makes weird not funny, almost insulting jokes, and people tell me he is the head of the department. I tried to give the guy the benefit of the doubt the first 3 times I had him put a line in me...but the 4th time I had him, and it took him an hour and a half as well as both arms, AND when another doctor says to him, "would you like me to take over" (insinuating that he was taking way to long and going about it the wrong way) so on top of our previous history, me and this doctor, that was it, I called it quits on him...sorry dr. you've had it, I red flagged myself and you will never touch me again....So on Thursday if I see him, I'm either going to OD on my adavant pills, or I will just have to flat out refuse to have him, it's too traumatizing. I swear he makes me sicker from the experience for days after wards.
Anyways I'm not going to get discouraged, because these IV's will help me feel better. It's pretty frustrating when the littlest thing makes you get out of breath, so it will be nice to feel better on some meds...
It sure does feel like since November I've had some really bad karma coming my way...but I guess that just means it can only get better.
These IV's will make me feel fantastic again, I'll continue to work out, and while I'm at home doing these IV's I'll get to research my road trip out east with some girlfriends, my trip to California with my mom, my trip to Washington with my cousin, my trip to Barbados with my best girlie NM, and my trip to Ireland in September...All of course are works in progress, but hey I've got to have something to research for the next few weeks on IV! ha
I've been reading these books by Jeannette Walls, and I'd like to think I have gumption! So I've been handed a couple batches of lemons these past few months, I'll just pour myself another glass of wild jumbleberry juice please.
Monday, January 18, 2010
clinic day tomorrow.
tomorrow is clinic. I have been short of breath since Saturday. Today has been the worst. It just feels as if there is such a heaviness weighing on my chest. Doing the littlest things, like putting on my winter boots, leaves me breathless today. My blood sugars are all fine, and there are no other signs of an infection, other then my shortness of breath, and I've been really tired lately. Falling asleep really early after dinner...sigh, so close, yet so far. My trip is only nine days away. I hope tomorrow will tell us more, and they can do something for this shortness of breath, because it's really quite bad. I don't get it, ,the weather is warmer, ugh so frustrating. Send out positive thoughts and vibes that something changes over night and this shortness of breath leaves, and heavy chest goes away!
I'm still managing to work out though, so that's good, although I have to stop more often and let my oxygen levels catch up to normal. We'll see what tomorrow brings...boy what a roller coaster.
I'm still managing to work out though, so that's good, although I have to stop more often and let my oxygen levels catch up to normal. We'll see what tomorrow brings...boy what a roller coaster.
Sunday, December 13, 2009
go go go go go...so busy
this is the first time i've had time to actually sit down and write a good long blog.
I like writing this blog, because it's something that I can go back and look on, and re read about what i was feeling, and going through at that point in my life.
Last Tuesday I had clinic...majorly dissapointing...my lung function was down for the first time in 5 months. I had been rock solid at .81 and even increased it to .83 a month ago...now i am down to .77...my white blood cell count was up at 17! the normal is 11, three weeks before they were at 20...so they were down a bit...so infection still though. bah! I just finished a course of cipro and septra antibiotics, but they didn't seem to do the trick. Cipro never really works. Anyways so my doc Dr. S. (amazing woman) put me on levoquin and upt my pred! ( I know i know i've been working for months to decrease it) but it seems to be ashtmatic symptoms so I gotta up the pred...anyways so I only upt it 1 mg so far no more of a puffy face then usual, which by the way totally goes down on the days that I work out. I guess the water retention like drains down or something after running and walking for 1 and half miles? 1 mg though seem to be all I need, normally she would have put her patient up to 20 mg but my body is just SO sensitive to prednisone that 1 mg seems to be doing the trick. Levoquin is also helping I think, I was able to back off even more on my insulin, and my SOB (shortness of breath) is decreasing, also my resting oxygen has come back up to 94, phew. it was bouncin' around all over the place, but since Thursday she seems to be stable.
One dissapointing thing this week, I have not worked out since wednesday. I know I feel gross! I have been SOOOO busy though. It's no excuse and I should have organized my time better, but stilll, Thursday I went to Rae Spoon Concert, soo fun. Friday had some girls over, Saturday Christmas house party in the city, and Sunday, afternoon christmas party and Sunday evening welcome home party...I AM POOPED. I have never had so many naps. I have not napped in months...in the last four days I think I have napped every day. Staying up till three in the morning and up at 9am is not my fortay for four nights in a row!
I also spent all three days updating and editing 150 photos for my website. Christmas is 12 days away! Busy time for jewels. I'm hoping I'll get a D40 or D3000 camera on sale in the holiday sales. Also I have done no Christmas shopping...I bought my dad a present before I left for barbados, but I have lost it...I hid it somewhere in my apartment and cannot find it for the life of me!
I cannot wait to just make some jewellery tomorrow, work out, and relax...no plans tomorrow night...hopefully it will stay that way, although the way things have been going, I'll probably end up doing something! haha
I have another busy weekend this weekend though, so I'd like to be low key throughout this week. Thursday through Saturday I am jam packed with things as well. It's good though...I'd be going nuts just sitting at home...thinking...keeping busy allows me only little glimpses of time to think about things...thinking about the things that have happened in the past month sometimes keeps me from sleeping...so I try not to?...
Next Wednesday is my birthday. 22 years old. Good gosh. what an old fart.
Alright so operation work out like mad this week, no skipping three days like last week! Increase lung function back up to .83 then .85 by January 5th appointment day.
Anyways I guess that is it for now! Hope everyone has their Christmas decorations up (I don't...but that's this week's goal too!)
I like writing this blog, because it's something that I can go back and look on, and re read about what i was feeling, and going through at that point in my life.
Last Tuesday I had clinic...majorly dissapointing...my lung function was down for the first time in 5 months. I had been rock solid at .81 and even increased it to .83 a month ago...now i am down to .77...my white blood cell count was up at 17! the normal is 11, three weeks before they were at 20...so they were down a bit...so infection still though. bah! I just finished a course of cipro and septra antibiotics, but they didn't seem to do the trick. Cipro never really works. Anyways so my doc Dr. S. (amazing woman) put me on levoquin and upt my pred! ( I know i know i've been working for months to decrease it) but it seems to be ashtmatic symptoms so I gotta up the pred...anyways so I only upt it 1 mg so far no more of a puffy face then usual, which by the way totally goes down on the days that I work out. I guess the water retention like drains down or something after running and walking for 1 and half miles? 1 mg though seem to be all I need, normally she would have put her patient up to 20 mg but my body is just SO sensitive to prednisone that 1 mg seems to be doing the trick. Levoquin is also helping I think, I was able to back off even more on my insulin, and my SOB (shortness of breath) is decreasing, also my resting oxygen has come back up to 94, phew. it was bouncin' around all over the place, but since Thursday she seems to be stable.
One dissapointing thing this week, I have not worked out since wednesday. I know I feel gross! I have been SOOOO busy though. It's no excuse and I should have organized my time better, but stilll, Thursday I went to Rae Spoon Concert, soo fun. Friday had some girls over, Saturday Christmas house party in the city, and Sunday, afternoon christmas party and Sunday evening welcome home party...I AM POOPED. I have never had so many naps. I have not napped in months...in the last four days I think I have napped every day. Staying up till three in the morning and up at 9am is not my fortay for four nights in a row!
I also spent all three days updating and editing 150 photos for my website. Christmas is 12 days away! Busy time for jewels. I'm hoping I'll get a D40 or D3000 camera on sale in the holiday sales. Also I have done no Christmas shopping...I bought my dad a present before I left for barbados, but I have lost it...I hid it somewhere in my apartment and cannot find it for the life of me!
I cannot wait to just make some jewellery tomorrow, work out, and relax...no plans tomorrow night...hopefully it will stay that way, although the way things have been going, I'll probably end up doing something! haha
I have another busy weekend this weekend though, so I'd like to be low key throughout this week. Thursday through Saturday I am jam packed with things as well. It's good though...I'd be going nuts just sitting at home...thinking...keeping busy allows me only little glimpses of time to think about things...thinking about the things that have happened in the past month sometimes keeps me from sleeping...so I try not to?...
Next Wednesday is my birthday. 22 years old. Good gosh. what an old fart.
Alright so operation work out like mad this week, no skipping three days like last week! Increase lung function back up to .83 then .85 by January 5th appointment day.
Anyways I guess that is it for now! Hope everyone has their Christmas decorations up (I don't...but that's this week's goal too!)
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