talking to the doc...

Okay so today I got the big boss Doc. She came in during my physiotherapy treatment and talked to me about the whole process of transplant. She explained to me that either this Thursday or FOR SURE next Thursday I would be discussed with all the team memebers from both hospitals, and then put on the list...soooo by next Thursday I guess I'll be active on the transplant list she said, as long as nothing goes wrong from the other hospital's end.
Then she discussed with me how there is two status. Status 1 is for people who can afford to wait a year for a transplant...and then there is status 2, the more urgent. So if lungs come up that are the right blood type and the correct size...people on status 2 get them. She said that she is going to recommend that I be put on status 2 list. say WHAT??.....did not see that one coming. I must keep myself well enclosed in a bubble I guess? Just how sick am I? I guess sick enough that I don't have a year to wait for new lungs. Status 2 is for people who are always on IV, with as low lung function as me etc. Scary to think that. I was saying to my mama today, man do we keep gettin' thrown things, left, right and centre, one thing after another...I feel as if we are not prepared. I've enclosed myself in a bubble, but it's a coping mechanism I use I suppose.

Anyways after the initial tears, and shock of being told your going to be listed at status 2, I sat back and thought, well GOOD. Who the hell wants to wait a year for new lungs? It's almost like not even being listed when your at status 1 it seems, since someone else will always probably get the lungs before you on the status 2 list. If I'm going to get new lungs, I might as well get 'er done now! What's the point in waiting in limbo? It also means I will hopefully get new lungs in the warmer months, since they break your sternum during surgery (yes that is one of my biggest ick factors about the whole thing, I have a thing with my sternum!) you cannot really get cold afterwards, or apparently it is AWFUL for your sternum. So all good things, I will probably/hopefully get transplanted in the warmer months, and be all better in tip top shape, and recovered for my champagne birthday, 23 years old on the 23rd day of December! Me and my friend N already planned out my b-day party. Hope all my girls like tea? haha

sigh...well so that's that I guess. Oh I also got from my cousin and Aunt a lovely little angel of courage

"when life tosses you a challenge,
or maybe a few.
And you have to decide just what you
should or shouldn't do
This "thoughtful" little angel will be right here to help you
Spread your wings with courage so you
can do what you must do
To follow your hopes and dreams
and make them all come true!"